Designer Baby Ltd Supporting The MND Association
Designer Baby Ltd is proud to support the Motor Neurone Disease Association (MND Association), in memory of ‘Grandad Dave.’
A rare condition, MND is the umbrella term for the group of diseases which affect the nerves in the brain, and the spinal cord. Not everyone shows the same symptoms, or experiences the same changes, and it can take hold at varying speeds too.
But one thing everyone with MND has in common and will have to face, is that it is life-shortening, and there is no cure.
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Who Does Motor Neurone Disease Affect?
Six people are diagnosed every day, and it continues to affect up to 5,000 adults in the UK at any one time. Sadly, also, six people will die from the disease every day.
Although statistics have proven that it generally affects adults over 50, we simply don’t know enough about it yet to define the causes.
Professor Stephen Hawking lived with MND for 55 years and defied the shorter life expectancy. He supported the Motor Neurone Disease Association from the start in the late 70’s and became a patron in 2008. His legacy continues.
And now it seems more sports personalities are bringing the reality of the disease to our attention. Doddie Weir and more recently, Rob Burrow, talk openly about the devastating impact on their families and their lives. It’s truly heart breaking to see such strong and physically fit men change and deteriorate so quickly.
In Rob’s own words, “First it comes for your voice. Then it takes your legs. It tries to rob you of your breath. But it can’t sap your spirit!”Motor Neurone Disease -
Motor Neurone Disease - Our Experience
Our family first heard about MND when the Ice Bucket Challenge (also known as the ALS - amyotrophic lateral sclerosis - Ice Bucket Challenge), started back in 2014, and soon went viral through the wonders of social media.
But like many of you no doubt, we simply did our bit with our buckets of ice and our donations. And then promptly forgot about it.
For some, it’s not possible to forget.
And it came back to us in the worst way when Grandad Dave was diagnosed with MND in July 2018.
A year after diagnosis, he lost his driving licence, which also meant he was unable to carry on his job as a taxi driver and wedding chauffeur. Grandad had always been a strong, proud man and held our family together in so many ways. And we were proud of him too.
I had an idea to start JJ’s Baby Boutique (now Designer Baby) when I was on maternity leave, and my Grandad supported me with starting up. He referred to himself as the ‘silent partner’ but I was, and still am, so keen to have his name as the face of the business!
A few years before, we had tried selling Dora the Explorer pyjamas, but that flopped when we didn’t sell any! So, I wasn’t expecting too much from this business.
Maybe we weren’t reaching high enough though.
This time, Grandad needed the focus, and I would message him every time we got a sale. He was so excited when we got our first order, then our first order to France and hit our first 100 orders! It helped to keep his mind occupied, being so involved, and sharing our social media posts. And I loved it.
We then rebranded in March 2020, and saw the business completely take off. He was so happy for us, but still didn’t appreciate the impact he was having on me, just by being here with me.
Sadly, he lost his battle with MND on 8th August 2020 – just 10 days before his second great grandson was born.
I’m so glad he got to see the success which this business is turning into before he passed. And the fact that I can use our business now as a channel to bring this disease to the attention of so many more people is even more beautiful.
Motor Neurone Disease Association
Although as yet there is no cure for Motor Neurone Disease, the MND Association focuses on providing access to care facilities, respite and palliative care, shares new information, research and campaigns for those people who are living with or affected by MND in England, Wales and Northern Ireland.
I know you won’t mind me sharing the link to this wonderful organisation https://www.mndassociation.org
Grandad Dave’s tribute page is our way of collecting donations, making our monthly donations and will house our own fundraising events.
Thank you for your support,
Team DB x